My top ten rules for parenting a child with a disability: 1. Accept. This doesn’t mean giving up, it means giving everything you have to make your child’s life as good as it can be. To accept, you acknowledge the gift hidden within the pain. You learn to see the silver lining. My silver lining [...]
Posts Tagged ‘developmental disabilities’
Top Ten Rules
Posted in Uncategorized, tagged advocacy, autism, developmental disabilities, disabilities, forgiveness, love, parenting, parenting a special needs child, pdd-nos, rules for disabilities, special needs on May, 7, 2012 | Leave a Comment »
To embrace this
Posted in Uncategorized, tagged adult agencies, adult services, developmental disabilities, disability, grief, worry on April, 23, 2012 | Leave a Comment »
Who would have ever thought that I would be in the mental space that I am in when it comes to the girl turning 18. For months, if not years, I have anticipated this time when she will prepare to exit the traditional school setting of public education and enter into the world of adult [...]
It comes in waves
Posted in Uncategorized, tagged autism, developmental disabilities, developmental disability, grief, loss, motherhood, pain, sadness, special needs on April, 9, 2012 | Leave a Comment »
It comes and goes in waves. In all honestly there are times that I have my head buried in the sand. I can talk the needed talk and make like I have it all under control. I can appear that I am dealing with the uncertainty of the future with my girl in the healthiest [...]
1 in 88
Posted in Uncategorized, tagged 1 in 88, autism, autism diagnosis, autism screening, daughters, developmental disabilities, disability, early indicators, pdd-nos on March, 30, 2012 | 2 Comments »
I rarely watch the news but last night for whatever reason it was on and I was curious as the lead story was the new CDC statistics on autism. Of course the statistics given were startling–1 in every 88 children will be diagnosed on the autism spectrum. Very startling. What stayed with me more [...]
Tizzy train
Posted in Uncategorized, tagged anger, autism, children, childrens hospital, developmental disabilities, disability, genetics, grief, life, motherhood, sadness on February, 7, 2012 | Leave a Comment »
I rarely get myself into a tizzy over things, especially around my girl. Really, the tizzy train moved on years ago, yet it seems a visit to the children’s hospital can make the tizzy train come roaring back on the tracks toward this station. The discussion of genetic testing sparked the emotions that often lay [...]
reverb11…lesson learned
Posted in Uncategorized, tagged autism, developmental disabilities, disabilities, elderly, love, reverb11, seniors, truth, yoga on December, 11, 2011 | Leave a Comment »
Day 11 Lesson Learned: What was the best thing you learned about yourself this past year? And how will you apply that lesson going forward? This lesson has inevitably surfaced in my life on countless occasions in a variety of ways over the span of my life. I believe that it is just one of many [...]
Merry-go-round
Posted in Uncategorized, tagged adult services, anger, autism, developmental disabilities, developmental disability, disability, emotion, Medicaid, parenting on October, 26, 2011 | 2 Comments »
My emotions go from outrage to hope and back again to outrage. Add in some fear and panic and one could say that I am nestled comfortably atop the merry-go-round. Believing that each and every circumstance I face–whether it seems to be good or not at the time–can offer me something greater than I might [...]
An Outrage
Posted in Uncategorized, tagged anger, developmental disabilities, disability, government services, Medicaid, motherhood, outrage on October, 23, 2011 | Leave a Comment »
In a devastating Medicaid cut, I learned yesterday that my daughter’s home health care services have been drastically reduced. The spiraling effect to this devastation is immeasurable. It begins with the immediate financial crisis. I have essentially lost one of my full-time jobs. Making my mortgage payment will be a challenge in a few months [...]
When you know better….
Posted in Uncategorized, tagged advocating, colorado, developmental disabilities, disability, outrage, rights on October, 20, 2011 | Leave a Comment »
When we know better, we do better~Maya Angelou The Outrageous Facts of My Community: An estimated 1.7% to 3.5% of the general population lives with a developmental disability. In the Pikes Peak Region, this may represent as many as 30,000 children and adults. Colorado ranks 47th of the 50 states and the District of Columbia in [...]
