As expected the big birthday was filled with a variety of emotion. My own emotion began the day prior as I was flooded with sadness. A rare time for me when I am keenly aware of the challenges. More often than not, I am positive, hopeful, and extremely grateful. However, I am human and on [...]
Posts Tagged ‘developmental disability’
something
Posted in Uncategorized, tagged anxiety, aut, autism, birthdays, developmental disability, disabilities, emotional regulation, emotions, fear, happiness, sadness on June, 2, 2012 | 4 Comments »
It comes in waves
Posted in Uncategorized, tagged autism, developmental disabilities, developmental disability, grief, loss, motherhood, pain, sadness, special needs on April, 9, 2012 | Leave a Comment »
It comes and goes in waves. In all honestly there are times that I have my head buried in the sand. I can talk the needed talk and make like I have it all under control. I can appear that I am dealing with the uncertainty of the future with my girl in the healthiest [...]
parent and professional
Posted in Uncategorized, tagged adults services, autism, developmental disability, disabilities, disability, functional skills, life skills, long term, special education, transition, work on February, 11, 2012 | 1 Comment »
Being part of special education as both parent and professional has been an incredible journey. It has offered me insights that I would have not had otherwise. While the insights come with a great amount of information and preparation for our future, it also brings to mind that some things might have been better to [...]
reverb11…ordinary joy
Posted in Uncategorized, tagged autism, daughters, developmental disability, joy, reverb11 on December, 22, 2011 | Leave a Comment »
Ordinary Joy: Our most profound joy is often experienced during ordinary moments. What was one of your most joyful ordinary moments this year? Ordinary joy shows up in my life through subtle ways that may be missed by people not living with someone with autism. The ordinary joy I experienced this year came in the way [...]
Merry-go-round
Posted in Uncategorized, tagged adult services, anger, autism, developmental disabilities, developmental disability, disability, emotion, Medicaid, parenting on October, 26, 2011 | 2 Comments »
My emotions go from outrage to hope and back again to outrage. Add in some fear and panic and one could say that I am nestled comfortably atop the merry-go-round. Believing that each and every circumstance I face–whether it seems to be good or not at the time–can offer me something greater than I might [...]
always
Posted in autism, tagged adults with disabilities, autism, developmental disability, grief, IEP on January, 22, 2011 | Leave a Comment »
This week I was reminded that the grief of having a child with a disability is a continuum that no matter how much attention you give yourself to accept, grief will sneak up on you in ways you may have never expected. On a logical level, I know that of course I will always be my [...]
really
Posted in autism, tagged autism, developmental disability, kids, life, school on August, 17, 2010 | Leave a Comment »
First day of school. Sophomore year. So many ‘first days’…one might think we are good at these days. By now, we are so good at these first days. Anxiety only that a mom could sense. I had her 3×5 cards ready one with a list of ok conversation topics for school and one with a [...]
Sixteen
Posted in autism, tagged autism, birthday, daughters, developmental disability, grief, life, reflections on June, 2, 2010 | 2 Comments »
I spent time looking through old photos albums the other day before my girls birthday. Some might see this as a self-inflicted torture for an already emotional momma, but it was really a great form of grief therapy. Through pictures I was able to recall so many moments in time. The moment of birth when [...]
lets try again
Posted in autism, disability, family, kids, life, tagged autism, birthdays, daughters, developmental disability, life, Mom, reflections, sadness on May, 30, 2010 | 2 Comments »
It is the Sweet 16 birthday party day! The invitations went out last week. The menu is set. The balloons are ordered. Some food is prepped. The final touches to the cake will be made later. When the idea of a birthday party was announced, I took a huge breath and with a positive outlook [...]
is and isn’t
Posted in autism, disability, tagged autism, daughters, developmental disability, grief, life, love, pdd-nos on April, 11, 2010 | 2 Comments »
It seems that milestones will be challenging no matter how many that my girl and I go through together. Turning 16 is a big one. While she is choosing what next Nintendo game she wants with an intermittent request for a car, it is yet another opportunity to find gratitude in what is, and acknowledge and grieve what isn’t. I [...]
